WE TAKE
GOOD CARE
The project is coordinated by a National Steering Committee
who oversee all phases of the study.
chief investigators

Professor Natasha Nassar
Perinatal and paediatric epidemiologist and the Financial Markets Foundation for Children Chair in Translational Childhood Medicine at the...

Dr Chanel Prestidge
Paediatric Nephrologist at Starship Children’s Hospital, New Zealand

Professor Stephen Alexander
Paediatric Nephrologist at the Children’s Hospital in Westmead

Dr Kylie-ann Mallitt
Senior biostatistics lecturer at the School of Public Health, University of Sydney

Doctor Chandana Guha
Research Fellow at the Centre for Kidney Research and School of Public Health at The University of Sydney

Associate Professor Martin Howell
Health Economist and Senior Research Fellow at the Sydney School of Public Health, The University of Sydney

Doctor Nicholas Larkins
Paediatric nephrologist at Perth Children’s Hospital

Doctor Simon Carter
Academic Paediatric Nephrologist at the Royal Children’s Hospital, Melbourne.

Doctor Hugh McCarthy
Paediatric Nephrologist at the Sydney Children’s Hospitals Network

Doctor Anke Raaijmakers
Pediatric Nephrologist at The Sydney Children's Hospital, Randwick, Sydney and conjoint senior lecturer at the University of New South Wales

Doctor Steven McTaggart
Pediatric Nephrologist at Queensland Children's Hospital, Brisbane and Executive Director Medical Services at Children's Health Queensland

Doctor Anita van Zwieten
Epidemiologist and Lecturer at the School of Public Health, The University of Sydney

Professor Armando Teixeira-Pinto
Professor of Biostatistics at School of Public Health at University of Sydney
Armando Teixeira-Pinto is a professor of Biostatistics at the University of Sydney and co-Director of the Centre for Kidney Research. His...

Professor Suncica Lah
Professor of Clinical Neuropsychology at the School of Psychology, The University of Sydney

Doctor Siah Kim
Paediatric Nephrologist at The Children’s Hospital, Westmead

Doctor Anna Francis
Paediatric Nephrologist at Queensland Children’s Hospital, Brisbane

Professor Kirsten Howard
Research Professor in Health Economics at School of Public Health at University of Sydney

Professor Allison Jauré (nee Tong)
Principal Research Fellow at the School of Public Health at University of Sydney

Professor Jonathan Craig
Vice-President and Executive Dean of the College of Medicine and Public Health at Flinders University and Matthew Flinders Distinguished Professor

Professor Germaine Wong
Principal Research Fellow at the School of Public Health at University of Sydney; Transplant Nephrologist at Westmead Hospital
associate researchers/investigators

Angela Rejuso
Research assistant at the Centre for Kidney Research, Children’s Hospital Westmead

Anh Kieu
Data Manager at the Centre for Kidney Research, Children’s Hospital at Westmead
KCAD Phase 1
Chief investigators
- Prof Germaine Wong
- Prof Jonathan Craig
- Dr Belinda Barton
- Dr Anna Francis
- Prof Kirsten Howard
- Prof Allison Jaurè
- Dr Tonya Kara
- Dr Siah Kim
- Prof Suncica Lah
- A/Prof Fiona Mackie
- Dr Hugh McCarthy
- A/Prof Steven McTaggart
- Prof Natasha Nassar
- Dr Chanel Prestidge
- Prof Armando Teixeira-Pinto
- A/Prof Amanda Walker
Study Team
- Dr Kerry Chen
- Brendan Cusack
- Dr Madeleine Didsbury
- Dr Chandana Guha
- Dr Laura James
- Rabia Khalid
- Dr Jennifer Lorenzo
- Dr Kylie-Ann Mallitt
- Dr Meredith Medway
- Narelle Williams
- Dr Gabrielle Williams
Having a holistic understanding of how chronic kidney disease affects both children and their families matters to us. We know that families are affected emotionally, logistically, and financially. It's not always possible to share all this in a 30 minute consultation, though, so taking the time to figure out what really happens behind the scenes and the ways that the clinical team can provide meaningful long-term support is key.
Clinician
Not working was hard. Every time I decided, okay, right that's it, this is the next five year plan, this is what we're going to do, she'd end up in hospital.
Mother, 40s
You have to borrow some money then you have to repay that borrowed money back. We borrowed some money a couple of times. We had to pay it back and we're broke again. So we had to pay that back and you can't keep doing that or you're back in the same spot all the time. So we try and do it off our own backs and it doesn't always work.
Father, 40s